Research Data Management Services Unit
Scientific research is increasingly more digital, with expanding volumes of data that necessitates good data management practices. Our role is to provide information, consultation, support, and training to researchers through all phases of the research data life cycle (Planning, Data Collection, Management and Analysis, Preservation and Sharing) such as;
We provide advice and support in the following areas
Note: This site is still under construction. Feel free to get in touch for any suggestions or inquiries
I am the Research Data Management Team Leader. Before joining the MDC, I was a scientific database curator at European Molecular Biology laboratories-European Bioinformatics Institute (EMBL-EBI), Cambridge, UK as well as the European Molecular Biology Organisation (EMBO ), Heidelberg, Germany. My background is in Cancer Research where I gained my PhD from the University of Bern, Switzerland studying the role of amino acid transporters in colon cancer progression.
I am a strong advocate for Open Science, community building, inclusion, and the promotion of women and underrepresented minorities in STEM fields.
I am the Research Data Management Project Manager. Previously, I worked as a Data Scientist in KPMG AG and I had been Research Assistant in Middle East Technical University for about 10 years.
My research areas are genetic and health data analysis and management; design of genetic data included Personal Health Record systems; privacy and security of Electronic Health Records; Personal Data Protection laws and regulations.
I have had experience in privacy and confidentiality of health and genetic data, data analysis methods, machine learning algorithms and IT infrastructures.
Research Data Management
Data can be;
- Raw- from primary measurements
- Processed- from secondary analysis and interpretations
- Published- final format available for use and reuse
- Metadata; data about your data
- It is everything that you need to validate or reproduce your research findings as well as what is required for the understanding and handling of the data.
Open data is data that can be freely used, re-used and redistributed by anyone - subject only, at most, to the requirement to attribute and share-alike.
- Open Knowledge Foundation
Research data management helps you achieve the following;
- Accountability and Integrity
- Ensuring data is preserved
- Minimizing risk for data loss
- Ensuring data is findable and easily discoverable, increased time-saving.
- Data can be used and reused, avoid duplicated effort
- Encouraging collaboration, research is more global requiring collaborative data sharing!
- Minimizes time and effort preparing for publication and open data requirements
- Increased recognition, citation, and scholarly impact
- Ensuring intellectual property rights are preserved
- Compliance with funders requirements and institutional policies
- Ensuring public funds are well spent and utilized maximizing its value
- To ensure scientists have what they need to do good science and to create good quality data
- Helps you answer the big question “ I have big data now what can I do with it?”
GDPR defines personal data in
According to and and the following personal data is considered ‘sensitive’ and is subject to specific processing conditions:
- personal data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs;
- trade-union membership;
- genetic data, biometric data processed solely to identify a human being;
- health-related data;
- data concerning a person’s sex life or sexual orientation.
Research collecting personal data from human participants should apply to one of the research ethics committees. Research committees’ guidance will help you to understand what to include in your application and what issues need to be addressed.
In other words, it is the data that provides essential context and relevant information about how the data was created, stored and shared.
For instance, metadata can describe various aspects related to an experimental procedure such as; who carried out the experiment, which parameters were chosen, what type of equipment was used, the output and results, how the results were analysed, shared and used.
Furthermore, in light of the ‘reproducibility’ crisis in the life sciences, along with the number of high profile cases of research misconduct arising, effective record keeping and metadata collection have witnessed major support from multiple stakeholders, for instance;
Increasingly more funding bodies mandate data management plans that outline the process of data and metadata collection, analysis and annotation as well as long term storage solutions and sharing practices.
While many journals advise authors to upload their raw/metadata appropriately as part of the publication process such as JCBhas which established JCB DataViewer, allowing researchers to deposit the original source data, i.e. raw imaging and gel data ()
Furthermore, metadata capturing ensures functional data sharing by enabling appropriate and effective reuse making the data more reliable and accessible, thereby facilitating novel discovery, analyses and interpretations.
There are other benefits for metadata collection on an institutional level, such as;
- It ensures data integrity, provenance and ownership which is essential in case of resolution of intellectual property issues
- Gaining maximum benefit and impact from research investments
- Reduced financial loss; current estimated loss is around 10,2 billion Euros/year for not having FAIR data implementation. ()
As for the researchers, metadata collection results in;
- Enhanced visibility
- Increased collaboration and citation of research
- Generation of more reliable data
- Facilitates the understanding of previous research thereby accelerating discovery.
While we have witnessed a massive digital expansion in the lab, the one aspect that has not benefited from digitization is record taking, which has to the large part remained analogue (i.e. on paper). In order to support researchers to keep track of the overwhelming amount and comprehensive digital data and metadata generated, the introduction of digital solutions such as electronic LNs need to be initiated and implemented.
It is important to recognise that lab notebook (LN) are used to document research data including; hypothesis, experimental procedures, analysis, interpretation and reporting, which makes them the primary space for data capturing and recording. Hence, ensuring proper documentation in LNs and effective metadata capturing is a central element in data management.
eLNs offer obvious advantages compared to traditional note-taking on paper LNs, for instance, compared to paperLNs, eLNs provide;
- Structured and detailed documentation allowing traceability and data extraction
- Proof of provenance and ownership, protection of intellectual property
- Seamless integration with lab equipment and digitally acquired data
- Storage solutions for different data types with varying volumes
- Facilitated data analysis and sharing
- Data readily available and searchable
- Ensured long term availability of the data
- Creation of templates
- Lab inventory management
- - domain agnostic, basic and widely used metadata standard
- (Data Documentation Initiative) - a common standard for social, behavioural and economic sciences, including survey data
- (Ecological Metadata Language) - specific for ecology disciplines
- and (Federal Geographic Data Committee's Content Standard for Digital Geospatial Metadata) - for describing geospatial information
- (MINimal information about high throughput SEQeuencing Experiments) - Genomics standard
- (Flexible Image Transport System) - Astronomy digital file standard that includes structured, embedded metadata
- - Minimum Information for Biological and Biomedical Investigations
Proprietary formats are file formats which usually can be viewed only in the software/tool which created the files. This software uses its own proprietary format to save and read the file. Only the company itself or licensees may use it. The description of the format is confidential or unpublished and the company/organization has the right to change it at any time.
In contrast, an open format is a file format that is published and free to be used by everybody.